Are chat rooms and Internet postings good places to look for information?

14. Are chat rooms and Internet postings
good places to look for information?

Be aware that there are many Web sites providing
false information and unsubstantiated claims, or
selling unproven remedies for profit.

We recommend many Internet sites, not only for
information about the medical aspects of cancer, but
also for information about coping with cancer, including
the family, emotional, financial, and work-related
issues that often accompany the diagnosis. Furthermore,
chat rooms and other Web site postings can provide
useful tips on locating information, finding
doctors who treat specific types of cancer, and discussing
many other concerns you may have.

Many patients and caregivers have found the Internet
a very valuable resource, empowering them with information
that may be particularly helpful in the beginning
of the diagnosis and when making treatment
decisions. On the other hand, too much information
can be overwhelming, particularly when the information
is riddled with unfamiliar medical terms. Even
recommended and reliable Web sites such as the
National Cancer Institute (NCI; www.cancer.gov) can
be confusing given the complex and technical nature of
the information provided.

Importantly, the Internet has increasingly become a
source of emotional support for patients and caregivers.
For example, the American Cancer Society
(www.cancer.org) offers chat groups and a variety of
“Message Boards” focused on many topics that may be
helpful. CancerCare, Inc., offers online support
groups for anyone affected by cancer, including
patients and current caregivers, as well as the bereaved.
These resources also offer other online support services
to patients.


Support group = A gathering that is focused on sharing
experiences, providing emotional support, and
relieving the sense of isolation. May be led 
by social workers or trained cancer survivor volunteers.


Be aware that there are many Web sites providing false
information and unsubstantiated claims, or selling
unproven remedies for profit. There are many unconventional
theories about cancer, its treatment, and how
to best cope with this disease, and not all of these theories
are helpful. In fact, some of the methods proposed
are potentially harmful. Keep in mind that you
need to read everything with a critical mind, and do
not necessarily believe personal testimonials, single
reports of “new cures,” or any other sources of information
that are not backed by a doctor you trust. Be
particularly wary of purchasing anything. If you hear
about something particularly interesting, do more
research on the topic using the recommended
resources suggested in the Appendix, and discuss all
information with your doctor(s).